We deposit your de-identified survey responses with the UK Data Service, based at the University of Essex, the UK Longitudinal Linkage Collaboration, based at the University of Bristol, and the Secure Anonymised Information Linkage Databank, based at Swansea University. Making the study data available through these central data stores makes it easier for scientists from different sectors, working in a wide variety of fields, to access and use the information in their research.
The UK Data Service is funded by the Economic and Social Research Council (ESRC) to meet the data needs of researchers, students and teachers from all sectors. The UK Data Service collection includes major UK government-sponsored surveys, cross-national surveys, longitudinal studies, UK census data, international aggregate data, business data, and qualitative data. We deposit de-identified data from all the studies that we run, including Child of the New Century.
The UK Longitudinal Linkage Collaboration (UK LLC) is a UK government-funded initiative that will help researchers investigate the effects of COVID-19 and its implications for public health policy. It is part of the National Core Studies, a major UK government-funded research initiative.
Across the UK, thousands of people are taking part in longitudinal studies like Child of the New Century, which follow participants over time. At the Centre for Longitudinal Studies (CLS), we run four studies – the 1958 National Child Development Study, the 1970 British Cohort Study, Next Steps, and Child of the New Century. There are many other studies in the UK, similar to these. Among others, these include, Avon Longitudinal Study of Parents and Children, Generation Scotland, National Survey of Health and Development, Southall and Brent Revisited, Twins UK, UK Biobank and Understanding Society.
The Secure Anonymised Information Linkage (SAIL) Databank provides secure storage and use of anonymised person-based data for research to improve health, wellbeing and services. Its databank of anonymised data about the population of Wales is internationally recognised. Backed and endorsed by the Government, the SAIL Databank receives core funding from the Welsh Government’s Health and Care Research Wales. We deposit Child of the New Century survey responses with the SAIL Databank.
Access to your survey responses by staff at the data stores is limited to those who manage and prepare the data for access and to those who keep the system safe.
The data are de-identified at all times, and steps are taken to ensure confidentiality and data security. The data services have leading Information Security accreditation (ISO27001) and are regularly audited by IT professionals, the NHS and UK statistics agencies.
Legitimate researchers are able to apply to access the data under a strict licence agreement and required to use the data for legitimate purposes. Where your routine administrative records have been linked to your survey responses, additional measures are in place, including limiting access to researchers based in the UK and to researchers who need to demonstrate that they will be competent and safe users, that their project is in the public interest, is not run for profit making purposes, and will meet the requirements of CLS and the owners of the administrative data.