What other information have you added to my data?

At previous surveys, your parents may have given permission to add your school and/or health records, and those of your brothers and sisters, to the survey data. We asked your parents rather than you as for people under 16 parental permission is needed. They may have also previously given permission for their own health and/or economic records to be added.

We have already started adding some information from these records to the information we have collected about you as part of the survey. Find out more about the information that we have added below:

–              Information added from routine education records

At the age 5 survey we asked permission from the parents of those of you in England to add information from your school records called the Foundation Stage Profile. When you were 7, we asked for their permission to collect information about your performance at school up to age 16. This includes Key Stages assessments and GCSEs in England and Wales, and Northern Ireland, and 5-14 levels and Standard Grades in Scotland. Your parents’ permission may have also been sought at the age 3 survey and/or the age 7 survey for accessing information from education records for your siblings (if relevant).

We have already added some information from these records. For example, for those of you in England, Wales and Scotland, we have already added some information from your primary school records. We have not yet collected this information for your brothers or sisters (if relevant).

These records, combined with the information you’ve given us during the surveys, will allow researchers to better understand your experiences at school and help provide better education and training for your generation and future ones too.

–             Information added from routine health records

At the 9-months Survey, we asked your mother for her permission to add information about you from her pregnancy and birth hospital records and your birth registration records. If permission was obtained, these records have been accessed and made available to researchers. This information is of great benefit to the study as it gives researchers a more complete picture of your very early life conditions, which we know can have important long-term effects on development.

At the Age 3 Survey, we asked for your parent or guardian’s permission to add information about hospital admissions and treatments you might have received from birth to age 7 years. This information is held in routine records kept by the National Health Service. This permission was again sought at the Age 5 Survey, to ensure everyone had the opportunity to consent.

Then at the Age 7 Survey, your parents were asked for their permission to access information about you, and about your brothers and sisters (if relevant), held in routine health records from birth to age 14. These records relate to admissions or attendances at hospital, visits to a family doctor or other health professional, records of specific conditions, and prescriptions given. We also sought their consent for their own health records to be added.

We are now starting to get some information from your health records. For example, for those of you in Scotland and Wales, some information from your hospital records has been added. We have not yet collected this information for your siblings (if relevant) or parents.

These records, combined with information you’ve given us during the surveys, will allow researchers to look in greater detail at what affects the health of children of the new century, and how policy makers might improve things for you and younger generations.

For those of you in England, NHS Digital hold all hospital admissions and outcomes data from the Hospital Episode Statistics (HES) dataset, and we will link this information to the information collected about you as part of the study after the Age 17 Survey. The information provided by NHS Digital may also include civil registration data from the Office for National Statistics. For those of you in Scotland and Wales your medical records are held by the Information Services Division (ISD) of NHS National Services Scotland and NHS Wales Informatics Service’s Information Services Division (ISD), which have already sent us your records. We are aiming to make them available to researchers soon.  For those of you in Northern Ireland, it is the Northern Ireland Health and Social Care (HSC) that maintains this information. We have not yet applied to them for your records.

–              Information added from economic records

At the Age 7 Survey, your parents were asked for permission for their economic records to be added. This includes information about benefits, employment, earnings, tax credits and occupational pensions, and national insurance contributions.  The consent for the linkage of information on benefits and employment was updated at the Age 11 Survey.

We are now in the process of adding this information from your parents’ economic records, kept by the Department for Work and Pensions (DWP) (and the Northern Ireland Department for Communities, Social Security Agency) and by Her Majesty’s Revenue and Customs (HMRC). This information will give us a better picture of your family economic circumstances without asking additional questions in the interview. It will allow us, for example, to examine in better detail the impact of family economic circumstances on your educational progress.