Do you add any other information to my data?

Government departments and agencies hold information about people which they use for routine administrative purposes. From time to time, we add information from these routine administrative records to the study data. We only do this if we have permission from the people whose data are being linked.

At previous surveys, your parents may have given permission to add your school and/or health records, and those of your brothers and sisters, to the survey data. For people under 16, parental permission is needed. They may have also given permission for their own health and/or economic records to be added. At the Age 17 survey, we are asking you for the first time, to give your own permission to add other information about you. Find out more about this in the “Age 17 Survey: Questions about adding other information” above.

Whenever we add information from administrative records, we securely transfer personal details (such as the person’s name, sex, date of birth, address, NHS and National Insurance number – if held) to the government department or agency. No other information about the person, or any of their answers to the surveys, is sent. The government bodies or agencies only use these details to identify the person in their systems and then send us the information from their records. Once the records are identified, these personal details are destroyed. When the information from the records is sent to us, we add it to the information collected in the study, and make it available to researchers under restricted access arrangements. Names, addresses, National Insurance and/or NHS numbers, are never disclosed to researchers.

The permissions for adding information from administrative records can be withdrawn at any time, without giving us any reason. Permissions can be changed by writing free of charge to: Freepost RTKC-KLUU-RSBH, Child of the New Century, 20 Bedford Way, London, WC1H 0AL, or by emailing the CNC team at childnc@ucl.ac.uk.

We also add information which is not about you individually, but is about, for example, the school you go to or the area you live in. Any information like this provided to researchers is de-identified and cannot be used to find out who is in the study.